Saturday, November 30, 2024
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Say Anything.

There are a few posts hovering right in front of me that have been waiting to be written. It’s hard to explain their presence, almost like they line up saying “Please write me next.” This particular one has begun to overwhelm me on a daily basis but I’ve fought putting my thoughts to words as there are so many writers that have already expressed this very topic much more eloquently than I will in a hurried session at my keyboard.

But if it’s in my head and on my heart, I’ve learned my path to peace is to release it and give it to you…

Maybe one of you needs to see it.

Maybe one of you is about to encounter someone experiencing profound loss and you’ll wish you knew the right thing to say.

A few weeks ago, I was at a beach event with my foster son when another mom sitting near me asked how many children I have. I gave my standard response: “One in heaven and two at home.” She took my open door and immediately shared that a dear friend had also lost her son and asked if I had any advice on how to be a good friend to her friend.

My advice? The answer was simple: “Say something. Say anything.”

If her friend is taking to social media to post about her child or anything relating to the loss of her child, do not scroll by, do not just click a like and move on. Take the three seconds to post a heart, write “Thinking of you” or “I can’t imagine” or “I love his smile in this photo” or “That’s a great shirt, love his style!” If she is posting about her child, she is trying to share him with the world, to remind people he’s still alive in her heart and her memories.

Validate her love, her pain, her grief, her journey, his life, his memory.

SAY SOMETHING. SAY ANYTHING. Every. Single. Time.

Tired of her posts about her dead child? I guarantee you she’s more tired of having him dead.

Wish she would move on already? I guarantee you she wishes she knew how to breathe without her eyes welling with tears.

Bored of the same photo cuz, well, been there seen that? I guarantee you she aches over the fact there will be no new photos to share of her precious baby.

The second part of my “Say something. Say anything” advice is this: If you think of a parent’s lost child tell them.

As an angel parent, I can tell you a few of my truths that are relatively universal among other angel parents: we are scared to death of people forgetting about our baby, of ceasing to remember their lives mattered; we are afraid people will stop caring about the life our child lived; we are afraid of people seeing how badly we are still hurting years down the road for fear of judgment or being told to move on; we are trying to be sensitive to your comfort and don’t want to make you sad when we talk about our baby as it’s our own burden to carry, not yours; there is nothing more in this world that we would love to talk about than our precious child that consumes our heart from afar.

Our angel children are our favorite things to talk about… be careful asking to see a photo of Tanner because I’ll show you 100. Yes, there will be tears streaming down my face because I miss him with every ounce of my being, but I will be so grateful to anyone who will entertain conversations or photo onslaughts of my heart child.

A few weeks ago, a sweet old friend I haven’t spoken to in ages texted me to say that she was eating Pad Thai (Tanner’s very favorite food) and thinking of him. There, sitting at my desk at work – and suddenly all over again at my desk at home – there were tears streaming down my cheeks.

Someone thought of my Tanner.

They haven’t forgotten him.

And they cared enough to tell me.

I. Was. (And am.) So. Totally. Grateful.

I couldn’t find a pic of Tanner eating Pad Thai, but here’s one of him being silly with his Starbucks.

What? You think it’s a given that you haven’t forgotten our dead kid? There are no givens. (Bonus truth: Grief isn’t rational and sorrow is blinding.)

The mom at the beach mentioned she watches the Emmys every year in honor of her friend’s son who loved the awards show. She’s never mentioned it to his mom as she didn’t want to make her sad. My advice to her was, come next Emmy’s, call her friend and let her know she’s hosting an Emmy watching in honor of her friend’s late son and invite her to come toast the winners with her. I’d bet my favorite cat that this mom would be blown away to know that a friend not only remembers this bit about her son, but honors him every year by watching the show in his memory. What a gift.

For those of you who worry you’ll make us sad by mentioning our angel, here’s your free pass: there is not a single moment that goes by that we don’t think of our babies and miss them with our very broken hearts. You are not reminding us of our loss, you’re sharing with us your presence in our journey.

Yes, there may be tears… but I can bet you there’s probably been tears that day already and there will be more to come. (That day, any day, every day. You get the point.) But behind the tears… There is a gratitude that you remembered our baby and cared enough to tell us. There is comfort in being reminded we aren’t alone in this lifelong journey when you risk sharing in our grief, even if just for a few minutes. There is joy when we are invited to talk about this child that we still love oh so very much.

Also know this: there is no right thing to say. Nothing you can say will make it better. There is nothing you can say that will take away the pain. There is nothing that you can say that will make the hurt less. Don’t wait for the perfect words to come, don’t think eloquence is important. The fact you’re taking time to say anything is all that’s important.

While there is no perfect thing to say, I invite you to skip any and all judgment, advice and cliché platitudes. No, Heaven didn’t need another angel. No, he’s not better off anywhere but with me. No, I will never move on from loving and remembering my child.

Whether it’s been a month, a year, a decade or a lifetime…

Let the people you love know you still love the people they loved.

Two Years Too Long

I didn’t want him.

I actually, genuinely didn’t want him.

This little boy in the nursing home with sweet brown eyes and a big smile had Down syndrome and it scared me. Down syndrome was a foreign entity to my world and the unknown was uncomfortable.

But God handed him to me, so I took him despite my massive amounts of reservation. Even though I couldn’t see how, I believed with all my heart that it would work out.

It didn’t take long to fall in love with him. I mean head-over-heels-couldn’t-have-loved-him-any-more-if-I’d-carried-him-myself love. Our hearts were perfect for each other and he was more perfect a child for me than I ever dared dream for. For thirteen gloriously beautiful years I got to be Tanner’s mom.

My Tanner.

He became my heart. My world. My joy. My everything.

And then, in the blink of an eye… he was gone. His big, beautiful heart beat for the very last time at 8:20pm on Tuesday, April 11, 2017.

Suddenly, I didn’t want to live without him.

I actually, genuinely didn’t know how I was going to live without him.

Two years later and I’m still finding my way back.

I remember one early month after I lost my baby, I tried to join an online support group for parents who had lost a child. There was a post that immediately stuck out to me: it was a mom who shared that it had been two years since the death of her child and she was still struggling.

Two years? Still hurting? Still struggling? I left the group and walked away. I didn’t need that kind of negativity in my life. I didn’t need to surround myself with people who were that broken. Buck up and move on…. it’s been two years.

Yes, I passionately loved my baby. Yes, I was consumed by utter devastation over his loss. But it had only been a few months and I knew my love for him would carry me through the loss. The type of deep, aching, throbbing pain I was feeling would be temporary.

Even as a parent who had newly lost a child, I still didn’t have the faintest clue of the road before me.

Today marks two years since my baby took his final breath. Two years since I kissed his nose. Two years since I saw him smile. Two years since I got to take care of him. Two years since he reached out and took my hand. Two years since I got to be a mom to him. Two years since I got to show him how much I love him.

And it still rocks me to my most inner core.

About a year ago I returned to support groups (online and Onsite) in search of others who could even vaguely understand what I was going through. What I found is an amazingly supportive community of Angel parents who come around their own with love, support, compassion and an absence of judgement. I think back to that mom who posted two years ago and I wish I could reach back in time and tell her I’m sorry she is suffering and I regret not taking a moment to leave a message of compassion. I wish I had told her how brave she was to face every day anew, despite the heartbreak she surely carried. I wish I understood then what I know now…

I now know that two years is a blink and a lifetime, so is five… so is twenty when you’ve burried a child.

I now understand there doesn’t need to be an absence of pain for joy to exist. Angel parents can live a joyful life again, but the pain never leaves us, not even for a moment.

Most importantly, I now know you never, ever move on from a child you lost.

While we do not move on from a child, we can move forward holding onto our precious baby’s memories and the love we had for them. Tanner’s love was special, it was infectious and it was freely given out to friends and strangers alike. The old couple, the tatted-up biker, the strangers in the booth next to us were all likely to get a smile and a hug.

This morning, my heart is still very broken: two years is a long time to be without my baby. But I also know that as we spend a day Living Like Tanner and intentionally bringing joy to friends and strangers alike that by the end of the day our cups will be overflowing.

Today, we move forward… with heartache, with loss, with love, with intent, with Tanner forever in our hearts and always on our minds.

#LiveLikeTanner
#RandomActsForTanner
#GetDownSyndrome
#Adoption

**Feel free in joining me and my family in remembering Tanner by doing Random Acts of Kindness with your own family, friends or community. Do them in memory of Tanner, your own loved one, or just because being kind is awesome and we need more of it around us. Please share your adventures in kindness with the hashtag #RandomActsForTanner.

Tanner, my love, my baby. I can’t begin to tell you how much I love and miss you with every single breath I take. You are still my baby and you will be forever and always. I love you with all that I am. Heaven can’t come soon enough. Love, Mom-Mom

God Bless His Heart

God knows my limits.

After my precious Tanner died of heart failure I knew two things to be true: I wanted another beautiful human with Down syndrome in my world and I didn’t want to ever battle heart issues again.

Watching throngs of doctors, nurses and technicians lose the battle for Tanner’s life was the most horrific experience a mom can ever endure and a road I never want to walk down again.

Been there. Wished I never did that. Can’t want it.

You can then understand my relief when the preliminary adoption profile on “T3” was presented to me and there was no mention of any cardiovascular issues. I told God I would take whatever child He wanted to bring our way, but also prayed He would show mercy in His choice.

“Thank you, Lord,” I remember praying silently. Thank you for the gift of his health. Thank you for sparing me that pain.

I’m sure being T3’s mom will bring its own set of challenges, trials and tribulations, but I was good just knowing that his heart wouldn’t be one of them. Remembering back, I lost track of how many times I struggled to gauge if Tanner’s exhaustion was a bi-product of a busy day or a weary heart. I can remember sitting, sometimes for hours, watching his heart beat, making sure it looked the same as the day before. I can remember late night phone calls to my cardiac-nurse sister wondering if certain symptoms he was displaying were indicative of a problem. My own heart ached every time I worried over him.

Down syndrome and speech delays… that was the extent of T3’s diagnosis and I was cool with that.

Walk in the park.

Until it wasn’t.

My social worker expressed an interest in T3 on my behalf and a more comprehensive review of him was sent our way. There, as if in bold print, highlighted and underlined: congenital heart disease.

He’s the one with the bad heart but in that moment, mine seemed to stop beating.

My eyes filled with tears.

Heart disease?

Again?

Really, God?! Did you not see what happened last time?

I just can’t.

I wasn’t exactly the poster child for grace in the face of death. Plus, I had already thanked God for sparing us. Did the whole TIA not mean anything to Him?

No thank you. Pass.

I closed his paperwork. Told my social worker I needed to give it some thought,
but in my mind that door had shut.

This is not a path I could walk again.

That same night after receiving the tough news, I was set to lead Bible study. It was the first time since joining my Life Group a few years ago that I had been asked to lead, but our leader was out and they needed a pinch hitter. We were reading “Unstoppable: The Incredible Power of Faith in Action” by Nick Vujicic.

The chapter’s title was “Surrender.” I had read the chapter earlier in the week, made my notes and nothing really stood out to me. In an effort to be well-prepared — and let’s face it, I need a distraction from the heartbreaking news I just received — I decided to read the pages again. Immediately, Nick launches into the story of the Skinners, a Canadian couple who felt called to Uganda to open a church and then later realized God was calling them to adopt orphans from the war-torn streets.

The task the Skinners felt God calling them to seemed bigger than what they knew they could accomplish on their own. Ultimately, they surrendered their plans to God and He in turn has greatly blessed their church-building and adoption ministries. It’s what Nick said next about surrender that stopped me in my tracks: “When we spend all our time trying to remain in control, we risk missing the blessing that comes by putting faith into action and letting go.”

Are you kidding me, God?

Really?

On the day I find out T3 has congenital heart disease I’m scheduled to teach on a passage about (1) adoption (2) adopting out of their comfort zone, but (3) following God’s will knowing that in so doing they will be met with the greatest of blessings.

As a Christian, I don’t believe in coincides.

God couldn’t have spoken any louder if the passage had somehow called me out by name. It wasn’t even just a study I was scheduled to attend, but one He put before me to teach on.

Twenty minutes earlier I had mentally closed the door on T3. And now, I could feel God prying that door right back open.

“You said you would trust Me to bring the right child to you,” I heard Him whisper in the corner of my mind.

And it’s true. I had. “Whatever kid He had for me, I would accept.” I’d said it countless times. I just didn’t think He would ask me to go there again.

I opened the book back up and read the passage over and over again.

“When we spend all our time trying to remain in control, we risk missing the blessing that comes by putting faith into action and letting go.”

Maybe this is a test of my faith and God will reward it with a kid who outlives all of us, I thought to myself. That thought was quickly followed by the painful reality that maybe I was put here to love the kids whose hearts are biggest and need it the most, knowing it might end with me desperately clinging to the hand of another precious angel.

When Tanner died, my brother Dan texted me four of the most beautiful words and they still resonate deeply within me: “He was worth it.”

And he was. Tanner was. I’ve said it a hundred times that I would do it all over again, because he was so worth it.

T3 is worth it, too.

I texted my social worker: I’m in.

This weekend during T3’s visit he lifted his shirt and I was met by the all-too-familiar scar that ran the length of his chest. It’s the same scar that I used to love on Tanner; I just saw it as a part of his story, never guessing it would be what would take him from me. Sometimes I wonder if I don’t bear an invisible version of the same scar.

Just like the one before him, the love in T3’s heart is bigger than most. We had our first visit this past weekend. Turning to me and Travis at church he put his arms around us both and said: “Mine.” More than once he came up and wrapped his arms around mine and quietly nuzzled his cheek against my arm. At one point, as we were walking out of the house he quickly grabbed my flip flops, wanting to carefully place each one on my feet. Later, as we sat on the couch, him all bundled up in his new onsie pajamas and a soft blanket, he noticed my bare feet tucked near him and worried I might be cold he started to pull the edges of the blanket to cover my feet.

And to think, I almost turned him down… because of his heart.

It’s his heart I already love the most. ?

P.S. Our boy is coming home today…. forever.

*For anyone new to Live Like Tanner, welcome! Pictured is my angel in Heaven, Tanner.

I Want to Share Him!

You guys… this is killing me!

Having this cool, amazing, funny, smart, talented kid come into my world but not being allowed to really share him with you… it’s torture!

I take pics.

I share awesome dancing videos.

It’s what I do.

But my hands are tied and it’s driving me insane.

Needless to say, our weekend went awesome. There wasn’t a moment that wasn’t packed with something to do or someone to see, but through it all we got to know one incredible kiddo.

Travis and I found a piece of ourselves that got lost when we lost our Tanner.

“T3”, as I’m calling him, is special. Yes, every kid is special blah blah blah. But this one? He was clearly handpicked specifically for our family and meant for now.

We are going to great lengths not to compare him to our angel. And in the midst of our greatest efforts it’s almost like he’s going to greater lengths to show us that our angel is still here. Probably no less than fifteen times this weekend did he do something that was so totally Tanner-esque that it left Trav and I staring at each other and shaking our heads. Gestures, facial expressions, pronunciations, silly steps to a walk, unique dance moves, brotherly torture techniques… it was like he studied the Art of Tanner before coming to meet us.

Tanner had this very silly thing he used to do when he was contemplating a tough decision: he would brace his thumb and first finger on his chin in a classic thinking pose and then in a grand gesture point his finger into the air and say “Ah ha!” Everytime it would crack me up; Tanner’s favorite thing was making me laugh. On Saturday, asking T3 what he’d like to do, he looked at me, put his fingers to his chin striking a pensive thinking pose and then, quickly pointed toward the sky in a strong declaration that he had made his decision. I just starred at him, my eyes welling up with tears. Who does that?

Tanner did that.

T3 does that.

Taking a page out of Tanner’s classic how-to-harrass-your-brother playbook, T3 got in the car after church, put on his seatbelt and slowly began to recline the passenger seat… all the way into Trav’s now-smooshed lap. That was a favorite move of Tanner’s and T3 found no shortage of joy in the act. Although Travis may have been on the receiving end of the pancaking, I think he loved every minute of it.

I will confess that I haven’t cleaned out Tanner’s closet yet. Being kind to myself, I just decided to leave it until we needed to make space for another. Much to my enjoyment, T3 helped himself to Tanner’s closet and then walked into my room to show off his look: Batman pajamas, a red Power Ranger-esque jacket and not one but two capes. Tanner would SO approve!

#WearAllTheThings

All these crazy little things that brought us so much joy with Tanner are finding their way right back to us with T3. Yes, it’s a little bittersweet… but we are choosing to focus on the sweet.

There are crazy similarities, but there are also some huge ways that T3 is very different and will blossom as his own person.

He’s an athlete!

They told us this at disclosure meeting, but I didn’t really take it to heart. Let’s just say that I wish I could show you the videos I took of him effortlessly throwing a football as far as the eye can see, the basket he made from just within the 3-point line, the way he glided across the monkey bars or the repetitive cartwheels he did in a circle around me.

I’m still watching the videos in awe!

The kid is strong, skilled, talented and energetic. Special Olympics, here we come!

He’s also a total joiner.

Yes, our Tan-Man loved people. He especially loved quiet one-on-one time and would easily overwhelm with too much noise or too many people. Not our T3… the louder, the rowdier, the better! And you can bet he’ll be in the middle of it! We’re already battling over the volume control in the car… if your ears aren’t bleeding it clearly isn’t loud enough! ?

What I’m most excited about is his heart… but thats a post for another day.

Thank you for all of your well-wishes and sweet notes of encouragement. I can’t believe how blessed we are.

#Adoption
#GodPickedHim
#LiveLikeTanner

Vaguebooking Explained: Adoption!

I never wanted to have an only child.

There was no question when I sought out to adopt Tanner that he would be the first of many. He was as cute, easy and loveable as they come.

Tanner’s adoption finalized November 15, 2004. For a while, it was just the two of us, but about two years later I knew it was time for Tanner to get his brother.

“I could do one hundred more Tanners,” I thought to myself. And I could have!

Enter child number two, Travis.

Travis was nearly the polar opposite of his brother: he was a sweet-hearted rambunctious toddler without an off switch.

I loved Travis but I couldn’t do a hundred more!

Fortunately, I didn’t have to. I had my two boys and they had each other. Travis and Tanner were perfect for each other and together we were a perfect little happy family.

Well, until the whole part where Tanner had to get dead.

Suddenly, nothing was as it was meant to be… not in our books, anyhow.

Travis was missing his brother, his playmate.

I was missing the sounds of siblings playing, laughing and even fighting.

Travis and I were both missing the joy of loving a kid with Down syndrome. Tanner brought into the house music, relentless singing and smile-inducing laughter.

It wasn’t but a few short weeks after Tanner’s death that Travis and I were already talking about adopting again. It was never then (and never ever could be) about replacing Tanner — there will never be another like our T-man — but it was about creating the big, happy, messy family both our hearts desire.

About three months AD (after death), I inquired with my former adoption agency about moving forward to bring a new child into our home. I was having a good week, felt I turned a corner and knew I could have handled it.

They insisted that all adoptive families wait a year after the death of a family member before proceeding.

I begged.

We didn’t want to wait. I knew how long the process could be and just wanted to get the balls rolling in the right direction. I was ready — we were ready — I assured them.

Nope. No way. No how. They wouldn’t budge.

Frustrated I resigned to wait the year. Not long after, I was dealt a series of additional blows and sunk into the deep depression I shared about in my last post.

I’ll never know if they were right to make us wait. Maybe they were and their prudence saved a child from coming into a home of a mom battling depression. Maybe a new child would have provided the distraction our brains needed from the cavernous holes in our lives and we would have all made it through that much faster. We will never know. I do respect the agency for erring on the side of caution.

For the last year I’ve been functional, just moving slower and void of much of the joys this precious life has to offer. But now, as I shared in my last post, I am finally and truly better!

The day after we hit the one-year anniversary of Tanner’s death, Trav and I “celebrated” our survival by requesting a homestudy packet from the adoption agency.

There will never be another Tanner, never ever, but we have beds open and hearts ready for whatever kid(s) God wants to bring into our family.

I may have let God know I’m pretty sure He wants to bring us more kids with Down syndrome!

They sent me the packet. I opened it up and began reading. In short order history repeated itself and I was once again overwhelmed with the adoption homestudy to-do list. Just as I had stated in my five-word email to my first social worker, Becky, back in 2003 I was sure that “World peace would be easier.”

Since April 12th I have been slowly chipping away at our adoption homestudy: a long series of documents, tasks and training that must be completed in order to foster or adopt in the state of California. One again, I survived the process. If you keep your eye on the prize, check items off one at a time, anything is possible.

Well, we’ve met the state requirements and we are READY TO ADOPT!

Our stated criteria of what we are looking to adopt is: boy or girl, ages 3-14, mild to moderate physical and/or developmental disabilities (preferably Down syndrome), 1-2 siblings, OR… whatever child God brings to us! I know what I think Travis and I want. I also know that God’s plan for our lives is always higher than our own.

Whatever child God wants to entrust to our care, to our family, we are ready to welcome.

It’s exciting!

Admittedly, I’m on pins and needles. Travis is understandably excited and nervous all at the same time. While we are optimistic about the joy that will come with again growing our family through adoption, we aren’t naive to think it will all be unicorns and rainbows. The potential of a younger child will bring the trials of starting over with a toddler in the house… an older child may bring the task of helping someone through a difficult transition to a forever family.

A few months ago, I vaguebooked about God having his own plans for my life. While Travis and I have been hoping for a brother close in age to him, my agency had presented the prospect of a young baby girl.

I freaked a little. “I’m a mom of boys!” I thought to myself. Dirt and bugs and blues and all the crazy inappropriate things little boys do… that’s what I know. Girls are crazy little aliens to me. Once the idea settled, I got excited. The potential of adopting this little girl propelled me on to finish my homestudy packet. The idea of her was what I needed to keep me pushing forward.

Since then, and before our home was officially ready, the little girl was placed with another family. It wasn’t meant to be.

Bummer. But… okay.

The same day we lost the opportunity to adopt baby girl, a new child was presented! Eeeeek! (I’m kinda freaking out a little. Join me, will you?!) While we were quickly smitten with this child from the very first photo it’s still very premature and could fall through for a million reasons… this rollercoaster of ups and downs is all part of the process.

Adoption is a wild and crazy ride, and certainly not for the faint of heart.

November was National Adoption Month, but it should really be every day. There are hundreds of thousands of children in the U.S. foster care system with a significant percentage of them seeking, waiting for a forever family to call their own.

My new hope is to take this journey and blog that began with Tanner’s tragic death, and let it truly become our story of how we choose to Live Like Tanner; lives that are joyful, filled with smiles and hugs for friends and strangers alike, and one that proves you don’t have to be blood to love with all of your heart.

Seatbelt fastened?

My Journey Back Home

I’ve come home.

Apart from a very few brief hellos, I’ve been generally absent from writing this blog for nearly a year. I feel like I owe an explanation.

The last year has been an extraordinary journey. The best I can equate it to is riding a roller coaster in slow motion: there’s been crazy turbulence, exciting highs and heartbreaking lows… and all happening about 5mph.

Now that I’m back I hardly know where to begin.

Just to be clear, I didn’t really go anywhere — I’ve been here all along. Rather, a shell of me has been here.

After my precious Tanner-Man died on April 11, 2017 I was determined I would prevail over death. It might have taken my baby, but I wasn’t going to let it take me too. My Tanner was pure joy and I knew how strong I was capable of being: there wasn’t anything thrown at me that I couldn’t handle. You combine his joy with my strength and I knew I would be a force in the face of utter heartbreak: I would simply declare I was choosing joy and I would show the world what it looked like to trust in God’s plan while cherishing the beautiful memory of my perfect angel.

Oh hell, I didn’t have a clue.

The first two weeks were a total haze. Wonderful, dear people came and went. Food was delivered. Flowers began filling every corner of my house. I laid on the couch in a state of utter disbelief as the world somehow went on around me.

On April 23rd, nearly two weeks after his death, I did something amazing: I put a cube of butter in the butter dish. It might have been the tiniest of inconsequential events, but it was the first normal thing I had consciously done in nearly two weeks.

That’s all it took and I was back on track.

Butter.

My feet started moving and forward I went. Forward face first into an unforgiving brick wall.

Turns out I wasn’t as strong as I thought.

Every day I woke up I was faced with confronting the reality that my baby was still dead. Every step forward was another down a frightening path of firsts: first last load of his laundry, first last time putting away his toys, first time grocery shopping and not buying his favorite foods, first time going to church and not being able to watch him walk off to high school group with his cape flapping in the wind, first birthday where he didn’t turn a year older… and the list goes on (and on and on and on).

Every first was both an entry in my journal and a punch to the gut.

The loss of my heart child began to consume my every thought. Images of his death began to consume my vision. Everywhere I looked, I would see him — his last waking moment replayed in my mind over and over and over like a never-ending boomerang. (I didn’t know it at the time, but I was experiencing many classic symptoms of PTSD.) The pain began to seep out of every pore and before long I slipped to a dark place where I would lay sobbing in bed by the hour, desperately clutching a black plastic box that contained the ashes of my son.

I became frightened of the pain and the heartache, of facing another day under the suffocating weight of a deceased child. Television became my only escape. Immersing myself into another world was the only way to leave behind the pain of my own. I would wake up at six in the morning in a sheer panic that required me to immediately occupy my brain with television less I would slide wildly down the rabbit hole. My body would literally go from a deep sleep to panic attack in one single breath as I scrambled for the remote control.

TV on.

Escape achieved.

Another day of feeling put on hold…

And yet, when real offers of help were given, I turned them down.

I didn’t really want to get better.

My pain connected me to Tanner. I didn’t want my wound to heal. I didn’t want to let go of the box of ashes.

Or so I thought.

Months went on and I slipped farther away. By the time November arrived, I was suffering from PTSD, clinical depression, severe anxiety, panic attacks and PGD (prolonged grief disorder).

One day that November, my surviving son asked if he could go straight to Grandma’s house after school. “Afterall,” he said matter-of-factly, “You’ll just be in bed anyways.”

That was my moment.

There’s no way I did it myself, but at that moment, God gave me the strength to get up and get help.

I still had a son and he needed me.

That week I got to the doctors and was started on meds. It took about a month to find the right cocktail that worked for me: the first pill took care of my anxiety but didn’t touch my depression; the second pill handled my depression but caused a secondary anxiety not treated by the first pill; a third medication served as a mood stabilizer and handled the secondary anxiety but made me insatiably hungry and I gained thirty pounds; a fourth pill helped offset the appetite created by the third.

I fought shortness of breath, dynamic changes to my appetite, extreme vertigo and utter exhaustion while my body was acclimating to the meds and we were finding what “cocktail” would work for me. Then, suddenly, snap-snap, just like that I was functional.

Not great, not healthy, but out of bed and finally turning off the television.

That was November 2017, a full year ago.

Once I was strong enough to stand on own two feet, I started intensive EMDR (Eye Movement Desensitization and Reprocessing) therapy to treat my crippling depression and the PTSD that was sending me into spiraling panic attacks. The effects of EMDR were instantaneous and mind-blowing — single sessions were fixing massive traumatic wounds. As fast as they came, my panic attacks left.

My healing was then taken to a whole new level when I attended Onsite, a week-long therapeutic retreat for parents who have lost a child. Touted as “a year of therapy in a week” I was immersed in group therapy with the most amazing, compassionate, empathetic, resilient, vulnerable, strong and supportive people I’ve ever been blessed to know. Together, we fought through our shared heartache, grief and guilt, and I emerged from the week healthier and stronger than I had felt in over a year.

Having released the weight of guilt I was carrying, I came back ready to start living again. It was a much lower-key version of myself, and I required meds to address the clinical issues, but I was getting back into the swing of a healthy, ordinary life.

I was vacuuming.

One of the memories I carried from my week at Onsite was of another participant telling me how much more beautiful I was when I smiled… and he suggested I should do that more. A sentiment frequently echoed at home by those whole love me.

But I did smile. I smiled when I was happy. It’s just that it took me so much more to get there. There was no joy in the little things. It’s hard to say there was really joy at all.

What I and others failed to acknowledge is that the same pills that dulled the pain, quieted my depression and held off the anxiety attacks also robbed me of my joy, quieted my laughter and stole my energy. My motivation to do anything was gone, my drive was in park and I was simply going through the motions.

Every few months I would try to go off my meds. I sought healing prayer by the church elders, I prayed myself, had others praying for me and regardless each time by Day Three I would be overcome with grief. It wasn’t even that I was upset about my dead child, I was just heart-wrenchingly sad and there was nothing I could do to make it stop. Undeniably, I was still in the throes of depression and my mind wasn’t yet able to get through it on its own. I would begin to have anxiety about having anxiety attacks. Back on the meds I would quickly go. Healing takes time and my wound was great.

Throughout this part of my journey, I basically stopped writing. I didn’t have the drive to make the effort, I couldn’t find the words when I tried, and honestly, I was embarrassed…

Embarrassed to have failed so extraordinarily in my promise to choose joy. Embarrassed to have not been the mom that Travis, my surviving son, needed. Embarrassed to have so dramatically let down Tanner and his memory. Embarrassed I wasn’t stronger. Embarrassed I couldn’t be there for friends who had always counted on me. Embarrassed to have watched life happen around me — and to me — for the better part of a year.

I knew where I wanted my life to head, and I was aiming all I had in the right direction, but it was in slow motion. I would be dealt a difficult blow and would shrug my shoulders. Great news would come my way and I would casually muster a thumbs up. In every sense, for the last year, I was functioning pretty well and doing the right things; it’s just felt like none of it really it mattered.

One month ago, I again pulled myself off my meds. This time, days one, two, three and four passed with no consequence. The wave of grief I braced in anticipation of never came. Days five, six, seven came and went with only a few minor symptoms of withdrawal but no hint of the depression that had stolen the last nineteen months of my life. I started to walk a little lighter. Weeks two and three ticked by as I began to realize that I had made it through to the other side.

Suddenly, I found myself smiling at stupid commercials…

Game night with family and I laughed so hard I cried…

Friendsgiving with some awesome mom gals and my cheeks hurt from smiling…

Teasing my son…

Laughing at the cats…

Making silly faces and funny dance moves at impatient road-raging holiday shoppers (okay, maybe not my finest moment but I still thought I was hilarious)….

It’s been a full month and I’m so blessed to say that I’m now 100 percent med-free.

I’m back.

My drive and motivation are back in full force and for the first time in more than a year I have the energy to sustain my ambitions.

I decorated for Christmas before Thanksgiving.

I helped assist in an evacuation of a few horses from the Woolsey fire and have since returned to support those devastated by the fire. My heart is happy volunteering again.

I’m making (making!) Christmas gifts.

To be honest, I had no clue the haze I was living in. I was completely incognizant of how much the meds were also dampening my joy and ambition, of how much effort it was truly taking just to function at the minimum.

In no way do I regret reverting to medication to support my recovery — I don’t know how I would have made it through without them. I needed help healing. But now, an enormous weight has been lifted and it feels like I’ve been given a second chance to truly live.

Don’t get me wrong… my child is forever gone. I still get sad, and will forever have my moments… that’s normal, healthy grief, but the paralyzing, dysfunctional depression is finally well behind me.

I thought I was the strongest woman I’ve ever met, but it turns out all it took was one dead kid to take me out at the knees… or rather, the heart.

Coming out of this chapter of my journey, I’m so grateful. I’m grateful for a Heavenly Father who loves me and loves my baby even more. I’m grateful for every moment I had with my Tanner, I’m grateful for Travis and my amazing family and friends that have walked this horrible path with me, and I’m grateful for my health — body, mind and spirit.

I’m grateful for a brand-new ability to be truly empathetic toward those struggling with mental health issues: there’s nothing scarier than being trapped in a mind that won’t function the way you know it should. I’ve been there. I get it. And I pray I’m able to use this experience to someday serve others.

For those who have started checking in on me as we approach Christmas, my second now without my Tanner, I’m grateful for you. Thank you.

But I’m okay.

I’m great, even.

Last year Tanner’s spirit was very present during the holidays and we did a great job of including him. Because of that, I’ve genuinely been looking forward to doing it all over again.

Christmas is coming and I’m able to choose joy.

Finally.

The Inevitable

The inevitable happened.

Tanner has been moved out of his room.

My heart. 

It’s breaking.

His bed.

So empty.

Tanner’s toys and trucks and trophies and papers were left on the shelves of his bed as long as it made sense for his brother and me. Today, it was made clear to me that his brother needed to be allowed to move on with his space.

Rather than prolong the process, I just got to cleaning off the shelves.

I knew it would be hard.

It was so much harder than I expected.

I’ve somehow managed to get this far without handling Tanner’s favorite things. Travis has been the keeper of Tanner’s prized possessions thus far but today the task fell on my shoulders.

And appropriately so.

Mom-mom should be the one to tuck the toys away.

And so I went about carefully sorting the items, keeping that which I couldn’t bear to part with and finding them a place in his closet and sadly quietly parting with some of the items he wasn’t as attached to or that didn’t hold as many memories. At this point, it’s hard to justify letting anything go if his hands so much as even touched it once.

In the midst of my tears God blessed me with a very special gift: a one-inch notebook, each page filled with artwork by the hand of my precious baby that I’ve never seen. It’s probably the last of its kind I’ll ever find.

The task is done.

Every time I look in the room I’m reminded harshly that my baby is gone.

This is a hard one.

Can’t Pass ‘Em Up

Gratitude.

There is still a lot to be thankful for.

If you attended Tanner’s Celebration of Life, you would have seen me in bright orange blouse to match his favorite cape, which I also wore. My Tan-Man LOVED all clothing bright orange. The brighter the better!

It pained me yesterday to pass up these bright orange hightops which Tanner would have found to be the coolest shoes EVER.

Not buying them was a painful reminder that my child is dead.

So I bought them.

I am therefore so very grateful God has placed a three-year-old nephew into my world who shares so many of Tanner’s affinities, including his love of bright orange. I’m also grateful for a sister who will be understanding when her munchkin comes home wearing these and likely insists on them with every future outfit.

Some things I just can’t pass up.

Thank you!

Tanner says, “THANK YOU!”

Or at least I know he would if he were here.

Sorry this is delayed in coming but thank you to everyone who donated in memory of my baby and in honor of his 18th birthday. We raised almost $500 for toys for the children of CHOC Hospital’s CVICU.

On the Fourth of July, which would have been Tanner’s 18th birthday, we were able to deliver bags and bags of presents for the kids. As you’ll read in their thank you, this will bring countless smiles to the kids and nurses alike

Thank you for helping us make a difference.

Thank you for helping us bring joy.

Thank you for Living Like Tanner.

Eigh-teen!!

Since the day my baby boy turned 16 he decided he was going to jump ahead and just be 18.

(That’s part of the joy of having a child with Down syndrome… you never know what they’re going to decide to fixate on!)

But gosh-darned he was 18 and so proud of it!

“How old are you?” he’d be asked.

“EIGH-TEEN!!” he would exclaim.

“Silly boy, you’re 16!” I would jokingly counter. He would then dramatically plant his face into the palm of his hand, shake his head, and laugh. “Argh,” he’d giggle. “Sis-teen.”

If I knew he’d never live to see his 18th birthday I don’t think I would have ever corrected him.

On Wednesday, this Fourth of July, my baby will turn 18 in Heaven. Just like I always did for him (or so I told him) there will be fireworks, there will be birthday cake and I don’t doubt there will likely be a few tears.

As is our new birthday tradition, we set out 18 flags in the shape of a T on the front lawn. I sat down and the weight descended on me and I just began to cry. My heart broke as I began to think about this landmark year and my son who will not be with us to celebrate. Because of his self-appointing to the age of 18, I had so looked forward to this birthday and making it extra special. Now that it’s here I wish I could turn back time…. or maybe fast-forward through it. I HATE not being able to buy presents for him and watching his face light up.

In the last year-and-a-half, I’ve learned my best method of coping with this loss is when I get upset over something I can’t do I find a way to do it anyways.

This Fourth, Travis and I will be buying birthday presents for Tanner…. only we will be delivering them to the children of CHOC Hospital’s CVICU, the unit in which Tanner passed.

Want to join us in buying gifts?

Feel like buying Tanner a birthday present?!

I’d like to do a quick fundraiser in Tanner’s memory to buy toys for the treasure box. This is a special box of small trinkets and toys the kids in the CVICU get to pick from when they complete a difficult procedure, are especially sad or scared. Just a small way to lift their spirits.

In honor of T-Man’s 18th bday, I would like to invite you to donate $18 (or ANY amount, even $2 will buy two Hot Wheels cars) toward “Tanner’s Birthday Present” fund. I’ll collect money until noon on July 3, 2018 and then go shop for toys.

If you want to contribute toward birthday gifts, please PayPal me at Romney@Dilliant.com

If you’re local to me in Irvine and want to shop for your own items (a cool thing to do with your kids) I’ll be happy to collect them to deliver with our gifts.

We will deliver them on the 4th of July to celebrate Tanner’s birthday and his giving heart that was too big for this world.

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My baby boy in heaven, you’re going to be 18 in just a few short days. Finally…. EIGH-TEEN! Technically, you’re not a baby anymore, but you’ll always be MY baby. You’ll always be the hand I want to hold and the nose I want to smush in kisses. I love you forever.