Saturday, November 30, 2024
Home Blog Page 3

“Da say?”

By my bed sits a journal that I use to archive everything I can think to remember about my precious baby: his favorite words and phrases, the cute little things he used to do, how he ordered his Chipotle rice bowl.

Every few days, sometimes every few weeks, the list grows by an added, new precious memory.

It’s often surprising what will trigger a memory of my son. Even more surprising is how often I find one of our more commonplace interactions have failed to make their mark in my journal.

I’m not sure why…

Except maybe it’s because it wasn’t a memory in the same way my brain catalogues a funny story or silly moment. So many of these “memories” weren’t special, isolated instances, but rather our regular mom-and-kid offerings that were the fabric of our daily life.

There wasn’t a time with Tanner that we could pass a Hot Wheels stand without buying one. It took $.97 cents to make him squeal with joy and grin from ear to ear. It was the best dollars I’ve ever spent.

So now, when I pass a Hot Wheels stand and see a new hot car that I know would bring a smile to my boy’s face, I buy it. I have to.

To what end? I don’t know. I just know that today this little dollar purchase gives this momma’s heart a brief instance of peace to do something for her angel; someday, in some way, I know they will bring smiles to other little boys and Hot-Wheels-Loving girls.

Which brings me to this past weekend when I was out of town and couldn’t pass up one of the hottest yellow Lamborghinis I’ve ever seen. It had to join his collection, and it did.

Later that day, as my new treasure sat on the hotel counter, a friend picked it up and read the bold script on the side: “Lamborghini.” Instantly I was transported back to one of our regular special times together… I hadn’t thought of this since he passed, but in the very moment my friend read the name, I heard Tanner in his quiet, inquisitive, seeking voice…

“Da say?”

He would hold a car in his hand, usually turned on its top so we could view the stamp on the undercarriage, and squint his eyes as if trying to read the model. His cute little finger would point… “Da say?”

What does it say, mom?

“Lamborghini, baby. It’s a Lamborghini.”

“Oh! Ga-ghini! Cool!”

“Da say?” as he pulled another Hot Wheel out of his pocket.

“Mustang. It’s a Mustang.”

“Oh, Tuh-tang! Cool!”

And we would often go through 20, 30, 70… 100 cars — my baby offering me a chance to read to him, me happily providing a unique descriptor that set each car apart in his perfect little mind. And with every car, he was fascinated with the name and offered gratitude for the time taken to share it.

The ways I got to love him were so pure, so simple.

If only all love was so easy.

I’ve walked the halls of my home this past week and see Hot Wheels everywhere: they’re on my wall, in my purse, in a display case by my bed and still constantly appear out of nowhere as if some little Angel is hiding them for me to find.

And every time, I now see him, grinning, inquiring, with his outstretched hand showing me a Hot Wheel as that precious voice asks, “Da say?”

Tonight, I will be getting out his tub of Hot Wheels and reading aloud every single one.

Baby, if you can hear me, if you’re watching, stick around… Mom-mom’s gonna tell you what they say. ❤️

Thai Spice Noodos

Pad Thai noodles from Thai Spice

Thai Spice Noodos?!

Many moons ago, the kids and I had stopped by In-N-Out for a late post-Disneyland dinner. It was always one of Tanner’s favorite stops so you can imagine my surprise when we got out of the car and he requested a different eatery.

“Indian noodos.”

When you have a child with severe Apraxia of speech, any spoken language is more precious than gold. Us Apraxia moms have learned to encourage it in any way we can.

“You want Indian noodles?” I asked, surprised.

“Yes! Indian noodos!” Tanner happily exclaimed, thrilled that I had understood his speech.

While the burgers were being prepared for the other kids, I began a feverish search for Indian fast food open after 9 pm. My baby never gave me new phrases and I would have flown to the moon to find him his Indian noodles.

As luck would have it, a short hop and leap away was an Indian restaurant just waiting to serve my baby noodles. We loaded up, sped over and parked.

Tanner and I got out of the car, and he was beaming. He knew what he wanted, came up with the right words to convey his thoughts, was understood by his mom, and now walking with a purpose to order his Indian noodos. He was one proud little boy as he clasped my hand and walked through the parking lot.

Meanwhile, my head spun. Indian noodles. Indian noodles. We were big on Indian food but it was always accompanied by rice and he clearly wanted noodles. What was it he wanted?

Suddenly, we stopped right in the middle of the parking lot.

I looked at him and said: “Tanner, do you want Thai Spice noodles?” And his grin somehow got even bigger and his excitement ramped up a notch.

“Yep! Thai. Spice. Noodos!!!!”

I think there was an implied “Duh, mom, I was saying that from the beginning!”

With Tanner and his Apraxia, it was often hard to know what was on his mind. The fact that he was able to make an association between Thai and Indian floored me. We ran back to the car and quickly drove to Dinner Stop #3 halfway across town.

My baby got his Indian noodos.

Earlier this week, I made the mistake of suggesting to Travis that there was something Tanner “used to like.” It was a casual comment in passing, but I could feel the thud as my words hit the floor.

“Don’t say ‘did,’ mom, he’s still here,” Travis sharply corrected me.

I admit: it’s hard for me to speak of him in the present. I’m not there yet. You can’t tell me he’s here because I can’t see him, hug him and kiss him.

I’m caught up on April 10, 2017, and all the days before when “here” meant something totally different than it does today.

But my son was right. Tanner is still here with us. He will continue to live in our hearts as long as we choose to remember his life, his love. It’s up to us to carry on his legacy, to share his joy.

We concluded our talk with the only way we could find fitting: Thai Spice noodos.

And yes, the order was under Tanner’s name. After all, they really were for him.

Five Months

No, my baby…

I haven’t forgotten. I didn’t lose track. I didn’t hide from the memory.

Five months, today.

It feels like yesterday that I held your hand.

It feels like a lifetime since I’ve kissed your precious nose.

Only an Angel’s mom can understand how a blink and an eternity can exist in the very same moment.

Surely I’m not there yet, but I promise you I am trying to find my way to a place where my life will not be marked by loss, but by the love I have for you, the joy that I live in as your mom, the gift I have in the friends and family who have walked this dark path alongside me, and the hope in our Father that will someday let me dance with you again.

I will get there. One foot in front of the other. One breath and then another.

My angel in Heaven, my baby, my son, my love, my heart, my T-man, my Tanner…. mom-mom loves you so very much.

And oh, my child, I miss you so.

Heaven can’t come soon enough.

#LivingForTanner
#LiveLikeTanner

Jealous Of The Angels

A friend sent me this song “Jealous Of The Angels” by Donna Taggart.

I feel this. Every word of it.

Oh my angel, I miss you so much.

And yes, I am jealous of the angels, who join you around the throne tonight.

 

LVLKTNR

Baby boy in Heaven…

You lived.

You loved.

You sang loudly.

You smiled joyfully.

You hugged everyone.

You danced without reservation.

May we all live — and love — a little more like you.

#LiveLikeTanner
#LoveLikeTanner

Time to Be Kind

‘Cause I’m leavin’ on a jet plane
Don’t know when I’ll be back again…

Today I finally decided it was time for a Facebook break.

I need to be kind to myself for a little while. I’ve found that every time I log on to Facebook I’m holding my breath: scared of what memory I’ll see, more scared of what I’ll say. Scared of seeing a post that is going to trigger me, make me angry, sad, stressed or jealous…

Never in a million years would I want anyone to go through the loss of a child. And yet, I am becoming jealous of every friend who gets to keep their babies.

Truly, I am glad you do. I hope you get to forever.

I just need a break. My health is demanding it.

It’s not a total departure. I’m sure I’ll be on to post an update or read a comment, but my time on Facebook will be limited for a while. Heaven can’t come soon enough.

#LivingForTanner
#OneBreathAtATime

Tanner-Man, Mom-Mom misses you.

I’m Not Okay

I’m not okay.

And I finally learned, or maybe just finally accepted, that it’s still okay to not be okay.

I’ve heard and felt buzzings that, at almost 5 months into my son’s death, I should be farther along. People know people who have gone back to work much sooner.

But I came to learn that other people know people who went back to work too soon and then crashed from grief a year later…

My head wants to be okay.

My heart wants to be with my baby.

My body is begging for time to heal.

In four months I lost my baby, my precious first son, I lost my finances and my job, I lost my fiancé and my future (as I saw it then).

It’s honestly a lot for one to handle. Some days it seems like too much… way too much.

Stress can have such a powerful hold on the body. I’ve been trying to fight it but I’m starting to accept that this is a battle so much bigger than me.

I can’t just will myself well.

I can’t just decide to put one foot in front of the other. (Unless those feet are running to the toilet because I’m puking.)

Other Angel Moms will agree: you can’t begin to fathom this road unless you’ve walked it.

Friends: if you haven’t gone through this level of grief or trauma, I want to share what I am dealing with. Not so that anyone feels sorry for me, but because I don’t think we — as a community — can comprehend the toll of grief. I think understanding can help us sympathize. This road can be very different for everyone, but for me (on a near daily basis) I experience: fluctuating vision loss to the point that words on my phone sometimes look like ants, lightheaded, dizzy, nausea, puking, weight loss, depression, spiraling emotions, racing heart, confusion, inability to process simple directions or tasks, forgetfulness, inability to multi-task, and exhaustion.

And that’s after five months.

When you’re used to being healthy, smart and able to handle anything that comes your way, trying to work within these new, very debilitating parameters is exhausting and utterly frustrating.

Today I spent an afternoon with a newer friend, one who also happens to be a doctor and who lost her beautiful daughter three years ago.

Admittedly, I’d been trying to compare myself to her: this smart professional woman who seemed to be able to put it all back together after she lost her daughter. In some ways, it made me feel inadequate. I’ve wondered whether I was allowing myself to be some hyped-up drama queen feeling sorry for myself. I’ve been pushing myself to “get over it” and to “move on.”

And she admitted that three years later she struggles with the stress of picking out an outfit or uses post-it’s to remind her of simple things. Honestly, it was a huge relief to find out she’s still messed up… just like me.

I’m not crazy.

I’m not a drama queen.

I’m okay to not be okay.

I’m Tanner’s mom and I miss him… with every single ounce of my heart, soul and body.

Apparently, those symptoms I listed above? Nothing more than clinical symptoms of a truly broken heart.

There are good moments and hard moments. A few great moments and some that seem to swallow me into depths of despair.

I’m having a bad day. But, I find a little peace in knowing I’m not alone… or crazy.

One foot in front of the other.

One breath and then another.

#MissingMyTanner
#TannerILoveYouForAlways
#LivingForTanner

One of My Faves

When it comes to my precious son in Heaven, I have about 23849238 favorite photos.

But this is one of the very most favorite of the favorites. He was nothing but pure, perfect joy.

I’ve gotten lost in his face, his beaming smile and the sparkle in his eye so many times since I lost him. I just can’t get enough of him.

Dance Like No One Is Watching

This is one of my favorite Tanner videos.

I loved his abandon to dance no matter who was watching.

Loved the way he picked up her moves instantly.

Love his huge smile.

I miss every single part of him and being his mom.

We all need a little more dancing in our lives.

#LiveLikeTanner

God’s Got This

Thank you for your prayers, your kind words and your friendship.

I’m home from the ER. Got home last night.

My life isn’t perfect, but it is beautiful. I’m loved by a Father who protects me and offers me peace in him.

I have an amazing son in Travis. He is traveling a path of grief and loss, even I can’t relate to. And in the midst of his own pain, he called my best friend Jessica and asked her to take me out so he could surprise me with a clean house. He knows the kind of man he wants to be, and I’m proud of him and lucky to be his mom.

I am blessed with Sue, the mother beyond all moms. One who is willing to stand by me, pray with me, cry with me, bleep expletives with me (I’ve explevated (can I make that a word?) while she’s bleeped), and gives tirelessly of herself to see me and my baby through this horrible time. I can’t imagine walking in her shoes as she first lost a precious grandson but now must watch her own child struggle.

And, like Job, I have some of the most amazing, true friends. Incredible people who come to sit with me, cry with me, tell stories with me, play games with me, offer to bury bodies with me, or just do nothing at all with me. There are people who have surrounded me who easily come to mind as long-standing friends, but also more distant friends who pick up the phone to let me know I’m on their mind and in their heart.

I have amazing comrades in rescue who, despite the added burden they carry in doing so, give me grace to take a breath as I work to heal.

It’s been four months since my child died and this is already a longer path than I would have ever imagined. Never did I believe the depths to which loss can rock the soul of a human.

I am not well, but it is well.

My body is broken and healing isn’t happening at the speed I desire, but this is a part of my journey, a part of my story. Through all the heartbreak and pain, I praise God for His provisions in friendship, for the peace that I have in him, for the bold ways that He is truly protecting me and my family.

This past weekend, Travis was sharing with me sadness in being an only child and what that would look like in his life. My son growing up alone was never my plan. It’s never how it was meant to be: just the two of us.

We plan on changing that. Together.

There are so many children in this world who are desperate for family and for love… it won’t be today or tomorrow, but I am finding joy in the prospect of the two of us building our family and bringing in new love and new laughter.

I look forward to pursuing my passions without reservation or limitations and doing all I can to make my small corner of this world a better place.

There is still a long road ahead, but I have peace for I know that as long as we keep our focus on Him, he will direct our paths… and His way is always higher than our own.

And as Travis and I venture down this winding road, I know we do so with the cutest, most gleeful, most precious dancing angel looking down on us.

#KeepPraying
#LivingForTanner
#MoreLoveToGive
#GodsGotThis